Hi @altabiznet I checked my records but can’t find the actual orders for the Rituximab dosages. But I received one infusion weekly for four weeks.
Right after I was admitted back to the BMT floor at Mayo, my transplant doctor was there to meet me in my room along with another specialist whom he’d called in. This was a neurology pathologist who specializes in movement disorders and autoimmune neurology. Between the two of them they came up with a diagnostic plan for testing and then met back a few hours later with the diagnosis and treatment. It was a whirlwind for sure.

The rituximab was started a week after my release from the hospital when I could return home. Within that first 3 days on the 1000 ml Solumedrol in the hospital, I was able to actually walk on my own again with a walker. By the end of the week, I was back to walking solo several miles daily around the clinic. My follow-up treatment besides the steroids (500 to 250 ml weekly for 9 months) was the Rituximab for the next month. With combination of those treatments allowed my spinal cord to fully heal. I had PT to help regain core strength and gait improvement.

For a several years I had what I referred to as ‘electric days’ where I’d have some zaps and tingles. But subsequent MRIs showed no new activity so that was awesome! Even my doctors had said, if they hadn’t seen the before MRIs to compare with they would never know the extent of the damage without comparison. So I was really lucky. Sorry, that’s more than I usually share.

I don’t know where you live but if you’re interested in a 2nd opinion from a specialist at Mayo, it would be worth the trip.
Here is a link for requesting an appointment: http://mayocl.in/1mtmR63

Have you been working with neurologist since all of these symptoms started? What testing have you had in relation to your neurological symptoms?