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Side effects of hydroxyurea

Blood Cancers & Disorders | Last Active: May 6 9:37am | Replies (35)

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Profile picture for a10sgal @a10sgal

@lynns51 I also started taking HU at the beginning of April….500 mg daily. I was diagnosed with thrombocytosis 4 1/2 years ago and have been being monitored since then. My last blood test registered 932 so my hematologist started me on hydroxyurea. (I think that’s what HU stands for ?) The first week I was really thirsty, itching and nauseated. Feeling better now but definitely tired. I was wondering if you had any issues with blurred vision before starting HU? I have but not sure it has anything to do with this condition. I’ll be following you to see how you are doing and how it compares to my situation. In advance, thank you.

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Replies to "@lynns51 I also started taking HU at the beginning of April….500 mg daily. I was diagnosed..."

@a10sgal Thank you for your comment. I am experiencing some vision issues. I had cataract surgery about 2years ago. My vision improved except that I saw dark curved arcs on the outer edge of my eyes. This is something that can happen and grows less noticeable as time passes and the brain learns to ignore the arcs. Since taking HU the arcs are back and hard to ignore. They stay off to the far side of my eyes and tremble which is annoying, but my vision is still good. I also now have some blue tinges to the bed of my fingernails. My thumbs are particularly noticeable. Some days I am very tired and slightly nauseated. My doctor gave me medication to deal with that. I’ve noticed some slight hair loss. I have always had very thin, fine hair, so I was really hoping that wouldn’t happen! I plan to go over all this at my next appointment. Right now I’m grateful that I can mostly do what I want, but I tire so easily that I hope all the side effects do go away soon! I keep exercising as I have all my life. My husband has always helped around the house, but he cut three fingers on his table saw last month and that has been quite a painful experience for him that will take some time to heal. So, it is what it is and we deal with it, right? This message board has been a great help to me. I hope to keep documenting my progress here and follow fellow members.