Cerebral Brain Atrophy: Anyone else out there?

Thx, we will try the Keto diet, but he loves carbs so dont know how it will go. He no longer drinks alcohol. dr told him to stop. He does not seem to miss it. Has good days and bad days. Has to eat frequently , I think low blood sugar affects his walking.

Thx, for your advice. dr says PT will measure him for walker. He is tall 6’3 , so I think it will help

He is already83, so we would take 3 to 4 years. It does not seem to be getting worse . Has probably had it at least 4 years.

Hi @alexgoldman2 sorry to hear there is no known treatment for your diagnosis. What are the symptoms you are experiencing and trying to resolve? In your previous posts you stated you have remained physically active. Great to hear. I think it is important for your rehabilitation. Have you noticed any improvement by being physically active?

Thank you for your help. I have been diagnosed with cerebellum atrophy fir several years; one neurologist after another. Oh well, no help there, nor doses PT help. Life is full of surprises, isn't it. Alex

Hi @oldsuzanne55 The Keto diet is not an easy diet to follow especially for me because I do not like fatty foods or meats. My husband and I tried it for several months. My husband loved it. Eating almond flour, cream cheese, and sour cream was not easy but I did it. The desserts and bread did not have the same taste as I expected. For one thing, after getting off the diet, I learned to alter Keto recipes to make my own low carb bread with the regular flour. I use the same dough to make pizza which we enjoy every week. We never buy any bread. I make it in different forms like hamburger or hot dog rolls for sandwiches.
Glad your husband does not consume any alcohol. I stopped that too and caffeine so no regular coffee for me. I drink decaffeinated coffee and tea.
Has he had a fasting blood glucose test? I would advise seeing his regular doctor to see if a low carb diet is right for him. Toni

Dizziiness is Problem as is mobility; I miss going for walks, now walking from room to room is a victory, with a cane, of course. Alex

Hi @alexgoldman2 I agree walks are a challenge with imbalance. I have the same issues and use a quad cane mainly for outdoors around the house. It is a tremendous help with walking in the driveway and lawn. I am looking forward to setting up a small garden this year. Have you thought about a transport chair? I have purchased one on amazon. It is different from a wheel chair. I use it for long distances with my husband. He pushes the chair but we can go longer distances like to fairs or trails together. It is easier for him because the chair presents a less chance of me falling. He likes it. We haven’t used it at all during the pandemic. Last year the air show was cancelled as a result but we plan to use it more for future events. Wish you well. Remember where there is a will, there is a way. Toni

I don't know what a quad cane is or a transport chair I use a wheeled walker. What are those devices? Dizziness is the newest visiter .

Transport chair is a wheel chair with 4 little wheels . Has to be pushed by someone. Quad cane has 4 little feet on a little platform . Can stand up by itself