PNET: What helps with fatigue and weakness?

I'm sorry to hear of the fatigue you're experiencing. Have your doctors checked your B12 level? Its not unusual for pnets to cause a decrease.

Thanks for the suggestion. I’m taking B12 supplements but I may not be absorbing it very well.

@zacharycat , exactly! We look okay on the outside, but are completely different from the inside. I am also tired most days and most of the time. Holding on until midday, but very tired in the afternoon. I had dystal pancreatectomy, splenectomy, cholecystectomy and hysterectomy, plus liver metastases - my peritoneal cavity is " really a cavity" :). It is hard from outside ppl to understand that we are still sick, even without hospitalization and visible signs...

I’m amazed by your ability to make a joke when you’ve clearly gone through so much. That’s impressive and takes strength. I am fortunate that my stage of the tumour means they are monitoring its growth with no plans for surgery until it reaches a larger size. I’m sure I look perfectly healthy to most people, which makes it hard for others to understand why I’m so feeble.

@tmickelson
Some people get injections for it. Talk to your doctor about the fatigue and see what they suggest

@tmickelson @pavlina60 Maintaining a sense of humor helps. The journey can be full of ups and downs. Cancer doesn't play by the rules unfortunately. Sometimes making a joke, and laughing, is a healthy way to cope. I find laughter is very therapeutic.

@tomrennie I agree 100%.

@tomrennie , absolutely! Laughter heals!