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Considering Tulsa Pro or Proton radiation (full gland)

Prostate Cancer | Last Active: May 19 4:15pm | Replies (101)

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@brianjarvis

I think brianjarvis is saying exactly the right thing, that is why I wanted proton. But the doctors have little say anymore, everything is dictated by insurance run guidelines or otherwise disinterest of doctors who deal with too much paperwork. It isn't happening now or in near future to move toward more affordable proton and standard use of proton. I was even told by several places that the Varian proton machines are being discontinued but searches online do not show that (Varian was bought by Siemans). So that is one less proton system sold.

I think in a decade or more things may change and swing back to what brianjarvis has carefully laid out and is no doubt true but it takes many more good articles and the way articles are that is a huge side business too. Various interests promote agendas by repeat articles everywhere which just makes for too many articles saying the same things and real science slowing down even more. It will take time, lots of time. But for me today, I need to decide something, nobody will even offer me proton so what can I do, I am left with hoping I get one of the better x-ray/photon setups in the Varian ETHOS or Varian Truebeam both available to me locally, there is also a cyberknife too which seems a bit older.

Proton is one of the futures, so are better easier focal therapy like the Vapor/Vanquish and maybe Tulsa Pro if they get more bugs out because I had it and it is buggy still. So there might be a better future if the business interests stay out and doctors go back to science instead of production low end treatments and so on. What can we do, unfortunately not too much I find, I am a patient in need now.

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Replies to "@brianjarvis I think brianjarvis is saying exactly the right thing, that is why I wanted proton...."

@bjroc Have you consulted with the University of Florida Proton Therapy Institute? All they do is proton so if they say you're not an appropriate candidate I'm sure they'll give you a good reason. I consulted with them and was very impressed, but went with a highly recommend hospital with proton much closer to my home. If I lived closer to Jacksonville or I didn't have a proton center closer they would have been my choice.

@bjroc
In the monthly meeting Mayo held, the radiation oncologist. Discussed the fact that they have four proton machines at Rochester and are putting in two more. Proton machine used to require a whole building be built now they can be put in a room or two. Of course Mayo Rochester is constantly Expanding so they’re probably building new buildings anyway.

The radiation doctor said that he’s only used proton four times so far. He talked to his patients about the options for both and in the vast majority of cases they went with photon.

It would be interesting to hear that conversation.

Since it has become so much cheaper to build a proton machine environment the cost is Going down a lot, so there probably will be a much closer price difference between proton and photon. This is something that was predicted about a year ago at one of the conferences, by a radiation oncologist. It could be in the future. The only machines available would be proton machines..

@bjroc
You could try Dr Struve at University of Cincinnati. I know it is not close but….