← Return to Looking for what to expect as I consider Kidney Transplant

Discussion

Looking for what to expect as I consider Kidney Transplant

Transplants | Last Active: Apr 17, 2023 | Replies (201)

Comment receiving replies
@dshaver

I was wondering if anyone has information
about hepatitis. I have a direct donor who had hepatitis over 30 years ago. The donor department will not tell me anything.

Jump to this post


Replies to "I was wondering if anyone has information about hepatitis. I have a direct donor who had..."

I would think you have a right to know all the facts of your donor. My reading about my own issues lately caused me to read an insert that said some diseases can be triggered back into action by some treatments or medications you take. I am not sure this is word for word. But, I certainly would research it and demand answers on you donor. That does not mean you won't go through with it, but it WILL BE YOUR KIDNEY in the end. I would google the question on Google of course, or ask your doctor. Do you have RA? Are you receiving meds for the RA? That is what I have and this is the place I saw the comment. Cannot find it right now. Just ask again.

@dshaver,
I want to share two reliable resources with you. I hope that they can give you some of the information that you are searching for. Both have information about recipients and donor, as well as an easy read Q&A.

The United Network for Organ Sharing - https://unos.org/ - scroll down the opening page.
and
Mayo Clinic Transplant Page with Recipient and Donor Toolkits - https://connect.mayoclinic.org/page/transplant/tab/resource-33/

Rosemary

@oregongirl, It is my understanding that confidentiality and privacy are of utmost importance for both donor and recipient.
You do have a good point about it being 'your kidney', though. And this is particular concern is already addressed by the transplant requirements with the potential recipient if/when it occurs.
Rosemary