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DiscussionHow to Slowly and Safely Taper Off Prednisone but ... no set rules.
Polymyalgia Rheumatica (PMR) | Last Active: 4 days ago | Replies (79)Comment receiving replies
Replies to "@nancy53 Can you share more about your initial reduction from 20mg? Thanks"
The first time, I was prescribed 20 mg for five days and then off. After two days, I was in Urgent Care with pain spiking at an 8 with any movement at all. Prescribed 20 mg for 5 days then down to 15mg. Again, pain spiked 2 days after decreasing. Just finishing 10 days of 20 mg today. Plan is to drop to 17.5 tomorrow and if that doesn't work, go to 19mg. Seeing Rheumatologist for fist time in 2 weeks so just trying to hang on until then. I still have a lot of pain for 4 hours after taking my 20 mg in the morning so not sure I understand why we are going down and not up but will try to follow instructions.
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@lglowac
I thankfully can say that's a distant memory now. It's been a year since I finally got off the meds.
The thing to be aware of is how important tapering slowly is. Don't be discouraged if you have to go back up a bit during the process. I would be in so much pain that I just couldn't imagine dropping another .5 mg. Prednisone was so vital to easing the pain of PMR.
The most important lesson I learned throughout the process was PATIENCE. As I said, it took over a year to completely stop. After a year now of no meds - I am fully in remission. Exercise and an anti-inflammatory (mostly) diet have kept me symptom free. Thank God.
Best wishes to you.