@gingerw It seems like most people don't understand how the body works. That brings more fear when they get a diagnosis like this. I do believe that, at times, we go through some tough times in order to help others.

I've also had every major joint replaced but one hip - plus had two spinal fusions and was born with an immune deficiency called Common Variable Immunodeficiency. I have studied a tiny bit of genetics, found the 'broken genes' for that and for lupus. My father and his mother also had the immune deficiency, as proven by their medical records. I am the last of the immediate family, so maybe these experiences can help other people, allow me to be of some use before I kak off. LOL Having a sense of humor helps, too. I like to laugh at myself before other people get a chance to!