@babyboxcat
I was diagnosed with Primary autonomic nervous system failure in Jan 2025 and monitoring for the development of one of the 3 neurodegenerative diseases you mentioned. It looks like early PD so far. I agree its scary and can be overwhelming at times, but learning to accept the reality and move forward is so important to maintaining quality of life. Some keys for me include the following:
1) Keep up with your fluid status (don't get dehydrated) to avoid extreme swings into low BP from orthostatic hypotension. Also, be very careful in the heat - going from a cool environment to a hot one will drop my pressure dangerously. Go slow!! If you feel lightheaded - bend over and take deep breaths and/or sit down if you can and get out of the heat. Midodrine 3 X daily helps support BP and allows me to function.
2) Be sure to follow up regularly with a neurologist who specializes in Movement Disorders to monitor your progress.
3) I take a probiotic (GI rec) daily and try to avoid foods that aggravate bloating from slow gut syndrome.
4) I also take Miralax (generic polyethylene glycol) nightly to keep gut moving - its mild and also rec by my gastroenterologist. Omeprazole helps to control the GERD related to slow gut too.
5) REM sleep behavior disorder is controlled with Clonazepam 5 mg at bedtime (rx'd by neurologist).
It's a challenge, but manageable for now. Good luck