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Waiting for Donor confirmation, for BMT
Blood Cancers & Disorders | Last Active: 10 hours ago | Replies (10)Comment receiving replies
Congratulations! This is an exciting and anxious time for you as you wait for a firm date for your transplant. When I talked to my donor about his donation experience, he said that as a 21 year old college student he had some things that needed to fall into place before he could take time off to do the medication that forces stem cells into the bloodstream and then for the actual donation day.
As I waited for doctors to schedule my transplant date, I was busy doing all the preliminary testing. One of the scans revealed that I had some spots on my liver. I needed a biopsy and then wait for the biopsy results before my insurance would approve to proceed with the transplant. So, my mind was more occupied with worries about not qualifying for the transplant.
In your case, I recommend journaling about your experience. Since the weather is getting nice, maybe you can enjoy day trips to your favorite places. I also had a stack of books to read. If you don’t feel like going reading, may be you can listen to audio books on Libby or Hoopla.
Wishing you all the best with your transplant!
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@alive You are so kind with your suggestions! Thank you very much.
I hope to be able to thank my Donor at some point. It is much to deal with on the Donors part. I am so appreciative of their sacrafice.
You bring up excellent distractions , some of which I already do - especially reading. Now that I have arranged all that I can, "preparing" as I have from early on has left me with time on my hands. I have always been a "productive" sort of person who loves the outdoors.
It must have been nerve wracking to get the test results. That worry must have been all consuming. Im sorry to hear you went through that. Yes, that would be a large distraction.
I look forward to the pre-transplant testing to keep me busy! I do not have big concerns about tests results (crossing fingers) as my only comorbidity is Rheumatoid Arthritis and otherwise healthy. Thankful I do not deal with diabetes, blood pressure, heart, or breathing problems.
Ive had all of the tests atleast once over the past 2-1/2 years trying to figure out what the heck was wrong. All systems were great reports (crossing toes) with the exception of the last 3 Bone Marrow Biopsy's.
Last night, I realized that frustration plays a part in all this. Not having energy now even though I feel much better than I did. Any real exertion and I become out of breath. This winter did a number on our gardens. I adore planting. I tried, quickly became exhausted, even in the shade.
Recently, I have lightheaded moments. The Florida heat and humidity often sets off the itching so that limits my options.
Just yesterday, after reviewing the diet limitations after the BMT, I suggested to my husband/caregiver that I would like to eat out more often (we don't eat out much) to enjoy foods I will not be able to enjoy during recovery. Lucky me, he agreed!
Knowing others have struggled on some level with the waiting? It matters.
I appreciate all of your suggestions and will try everything for distraction.
Thank you for your post. A
All of the best to you!