Is a dexa every 2 years enough?
My doctor suggested that a Dexa scan every 2 years is what he uses to monitor Evinity then followed by reclast
I asked about blood turnover markers to see if meds are working along the way
He said he doesn’t use those
Time for a new doctor????
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If you are immunocompromised, you may want to think twice before taking prolia.
"Does Prolia weaken your immune system?
Medically reviewed by Carmen Pope, BPharm. Last updated on Feb 9, 2024.
Official answer
by Drugs.com
Yes, Prolia (denosumab) does appear to weaken your immune system. Research has shown people who take Prolia are at an increased risk of serious infections leading to hospitalizations, including serious infections of the skin, abdominal, urinary tract, and ear. There is also a higher chance of developing endocarditis (an infection of the heart’s inner lining, usually involving the heart valves) in those who take Prolia, and those with advanced kidney disease have an increased risk of severe, life-threatening, low calcium levels (hypocalcemia) developing, particularly if they have a metabolic condition called chronic kidney disease-mineral bone disorder (CKD-MBD). For some side effects, people administered concomitant immunosuppressant agents (such as prednisone or cyclosporine) or with impaired immune systems may be at an even higher risk."
Thank you for your thoughtful note. Just met with my endo today and we have decided to start me on Prolia after being on Reclast for several years. I was informed that i will be on Prolia for the rest of my life. So be it. Lets just hope it starts to build stronger bones.
Good luck turning your bone loss into building strongers bones and no fractures! I have been fortunate having no fractures and hope to keep it that way.
Thanks again for your thoughts. Appreciate it!
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1 ReactionWrong thread, but I can't delete. Disregard.
Update - there is now a dexafit in Denver. Now I'll investigate.
What is Dexafit??
@osteoresearch
https://www.dexafit.com/services/dexa-scan
My doctor actually laughed when I requested a ctx and p1np.
I insisted. I told him he didn't have to read it. I just wanted the results so this group and Dr McCormick could help me with my numbers. I definitely would fight for it these medicines are strong and you want to make sure they're working before 2 years down the road you find out you're sick and they don't. Plus you can get aDexa scan yourself. Just get the referral. Tell them you will be a Cash pay. Again insist it. They're only $85-100
Best Regards
@babs10 I am late to the party here but I had to request a CTX from my doc after about 1 year of Fosamax and before I did reclast. He somewhat reluctantly (maybe I read him wrong) did. Very low CTX (about 58). Had my 2nd once a year DEXA before Reclast; some improvement in T scores but not enough, thus Reclast. One year after Reclast at CTX 78; he was very happy with that. I was shocked when he said no DEXA for another year, and I am due for a second Reclast infusion in July, apparently without knowing via DEXA if the drug has worked at all, a little, or a lot. Treatment wouldn't change regardless I was told. Beyond zero sense.
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@jozer the DEXA doesn’t really impact the bone medicine protocol. The same with the CTX/P1NP. I like them because I like to look at my test scores and see if there are trends. But I also understand that the DEXA is vague in general and they didn’t tell me my bones were gonna fall apart in cervical spine surgery! Make sure the DEXA test that you get has the TBS analysis with it and keep taking those bone meds!
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