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Replies to "I was diagnosed with HOCM when I was 76. Many cardiologists throughout my life and many..."
Hypertrophic Cardiomyopathy (HCM) | Last Active: 28 minutes ago | Replies (15)
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I was diagnosed with HOCM when I was 76. Many cardiologists throughout my life and many incorrect diagnoses. My current doctor, who is pretty young, went to a conference and learned that the way they were taught to diagnose hcm in medical school was wrong. She was so apologetic. She sent me to a COE where I was put on Camzyos. It completely removed the obstruction. I still have cardiomyopathy and have limitation but it is much better
Good luck
Replies to "I was diagnosed with HOCM when I was 76. Many cardiologists throughout my life and many..."
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@dbruskin thank you for your story.
I don't know if I can get any medication to help me because the obstruction is so severe. On the echocardiograms the LVOT valsalva technique it's over 200mmhg. My old and new cardiologists have been practicing their craft for 30+ years. I can't understand how one cardiologist has many many echocardiograms on my heart and doesn't think there was a problem. The new cardiologist took one echo and saw it immediately. Then I was referred to a surgeon.
I just want to get this corrected so I can do things like vacuuming lol, laundry 😂, walking from room to room without pain and breathlessness, walking my doggie for more than 5 min. etc......
Thank you for your reply !!