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Replies to "@veryoldhippy Welcome to Mayo Clinic Connect! Thank you for answering the post from @enidbennett. You offer..."
Chronic Kidney Disease (CKD) | Last Active: 20 hours ago | Replies (36)
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Replies to "@veryoldhippy Welcome to Mayo Clinic Connect! Thank you for answering the post from @enidbennett. You offer..."
@gingerw I retired from medical coding, have taken pre-med classes plus more. That is why I encourage people to learn about their bodies and issues. It takes away a lot of the fear and helps us advocate for ourselves. Obviously, self-advocacy or taking someone with you who understands these things is imperative.
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@gingerw Thank you. I questioned my lab results beginning in 2021. They told me I was getting old and to drink more water, that the lab results were fine. They most assuredly were not fine and I questioned them further, finally telling them to not call me with results again, that if I had questions I would go directly to the PCP. Then, after drinking a gallon of water a day (yes, I measured it), the muscle cramps set in even moreso. I added electrolytes, figuring it was from doing yard work in the hot summertime. I ended up in the ER twice - was sent home the first time with a tiny mention of kidney function. The second time, I was directly admitted for pyelonephritis, a stone, fluid-overload, sepsis and heart damage. My eGFR is 20, creatinine very high. I had a heart cath and was two weeks in the hospital on IV antibiotics. I think the 4cm stone passed, but not sure because I am DONE with procedures unless it's an absolute emergency.
I have cut back on fluids per nephrology at 60oz. per day and less than 60 grams of protein. I had a vitamin panel ran because of the diarrhea and other issues and after having an allergic reaction to furosemide. We changed the diuretic to torsemide and that seems to help somewhat. With the nausea and not eating right for quite some time, the vitamin panel did show anemia and high vitamin A. I was taking a prenatal vitamin once in a while without realizing they were so high in vitamin A as are the wonderful veggies I love! I threw out the rest of those vitamins and was prescribed a liquid iron to take three times a week. It's really taking a long time to feel better and get some energy back. Every day is a new Day! LOL