@carolgk
I had my 2-yr follow-up today for my BMT. My Dr. loved that all my numbers are good. No concerns for the last 6 months. In 3 months, I get my 1st of two measles/rubella/mumps live vaccinations. I asked him why at 2 years my blood had not changed from my A+ to my donors 0.
He said no worries. If all my blood numbers, all of them are very good, my system is working. He said if that changed, he would have the next step ready.
I also said I wonder if I would have leukemia today if I had not had the BMT. He said yes, you would. No hesitation. Again, I thought to myself, i never thought it was that bad.
I was diagnosed Oct 2, 2023, by November I had a number of matches. My Dr said go on your vacation when I said I had one planned over the holidays. Come January the balls started to roll.
I had to find a caregiver. Two brothers and a sister local were not able to help. Two took care of my cats, sadly one died during my first 100 days. My friend gave up her bedroom to me. She slept on a bed she had for guests. She had a roommate I knew, who I found out later, was not so interested in helping "care" for me. My friend was supportive in all ways a caregiver was supposed to. I had few troubles after my 26 days in the hospital.
I had all the testing in late February/through March. There was a lot of paperwork to complete and my caregivers needed to be met and talked to. I was told my donor would be ready in late March.
Here on connect Lori was here to tell m about all of it. Once my transplant team gave me the paperwork, I was comfortable. I never agonized. All the tests were set up and I went. I thought for sure i would fail the breathing test. I did not. I was stable for every test.
Early April, the process began.