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Profile picture for ubynaaabi @ubynaaabi

Hi, I hope you are keeping well and have sorted this issue out or maybe have a better idea of what it could be? I’ve been suffering from the exact same symptoms as you and it’s really destroying my life with work and my own mental well being. It’s a really heavy sensation in your mind that feels like it’s stopping you from thinking or doing anything at all. I was curious if you found out what is causing this for you in the end? Thank you

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Replies to "Hi, I hope you are keeping well and have sorted this issue out or maybe have..."

@ubynaaabi Actually, I just found out I'm anemic. I have a ferritin level of five, a haemoglobin level of 9.9 and an oxygen saturation of 5%. Apparently, it is so bad that the lowest plan of American insurance will cover it. Unfortunately, they won't actually give me enough to keep me at the normal range for more than like, three months. Hence, my mom is trying to book me into the hematologist, but it has been a week and... nothing. Also, I am depressed, which was causing my odd back pain, and probably doesn't help anything else, but my medication being upped kicked finally in about February, so I'm doing better now. My brother, who actually led to me having a blood test, because he's an athlete who lost six kilos in three days because his iron was so low, and I believe he also might have had REDS, and I wouldn't be surprised if that was true. Mom figured she better test the rest of us, and while another of my brothers isn't anemic at all (he has low glucose instead), but I showed up as having worse iron than my athlete brother. Also, it turns out that my meds level is STILL too low; I'm probably the heaviest in the family (apart from Mom, because she is normal) because I am a healthy weight for my size, and the rest of them are actually on higher doses. The formula for high-school is 1 milligram of Amitriptyline/Endep per kilogram, with the conversion a little lower for Mirtazapine (I'm 61.2-ish kilos, so I should at least be on 45-50 milligrams of Mirtazapine, and the Escitalopram/Lexapro is the extra 5 milligrams).

To summarize, I'm so anemic I don't have enough oxygen to function. The heavy feeling in my brain? Oxygen deprivation.