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Vertigo

Autoimmune Diseases | Last Active: 15 hours ago | Replies (74)

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Profile picture for lindasrk11 @lindasrk11

@dmmeyers62 that is a very large dose of gabapentin. No wonder you had side effects. I hope you didn't stop it all at once. I started at a low dose and they increased it until the burning pain went away. I think the max was 1800 mg. ( A few months after that my daughter started referring to my "gabapentin ADD" attacks. That dose did have a noticeable effect my attention and forgetfulness.) I stayed on that high dose for a couple of years and then weaned down with the same protocol they used to increase it. But I did it VERY slowly. I didn't ask a doctor, I just did it. (I did the same thing with statins--i just went off them and waiting for the labs. When they started creeping up I went to red yeast rice.) Even when I was getting break-through pain, I kept the gabapentin reduction schedule. Mostly because of intervening events, it took me 6 years to get down to where I am now. I was going to drop it again when I got the sciatica followed by the lumbar surgery followed by the vertigo. Geez, that's a mouthful. But every doctor and surgeon told me to wait. So I'm waiting. Did you just stop all at once? Gabapentin acts like a nerve block for me--it only works locally on my neuropathic nerve pain. I've gone through other (additional) neurological pain but it didn't dent that pain (I'm thinking my sciatica two years ago.) You have some autoimmune conditions that may interfere with gabapentin. But you definitely need to address at least one or two of those conditions because you are in sensory overload. Each condition multiplies the others. The problem is that most doctors want to treat the condition but not the pain associated with it. Physical therapists too sometimes. Yes, it's time for Mayo. There are so many alternative medications that could provide relief, but you need a comprehensive evaluation that will take all your conditions into account.

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Replies to "@dmmeyers62 that is a very large dose of gabapentin. No wonder you had side effects. I..."

@lindasrk11 They took me slowly off the Gabapentin and also duloxtine. The duloxtine was very hard to wean off of. I changed doctor's and they were the ones who took off these medications.