Hi Carlie,
Your post caught my interest. I was diagnosed with Moyamoya disease in 1998 and had surgery. I had some of the same symptoms that you describe including warmness in my head and fatigue, along with other symptoms you don't mention (numbness in my arms that came and went, uncontrolled muscle spasms, speech difficulty). These symptoms were resolved with the Pial Synangiosis surgery I had for Moyamoya disease in 1998. I'm curious if you were evaluated (from an experienced neurosurgeon and radiologist) using an MRI/MRA for Moyamoya disease, which is very clear on a scan--The blood vessels look like a "puff of smoke", which is the interpretation for moyamoya.
Best wishes in getting the medical care that you need! I'm happy to keep in touch if you would find it helpful.
Valerie.