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Anyone living with Essential Thrombocythemia with JAK2?

Blood Cancers & Disorders | Last Active: 3 hours ago | Replies (439)
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Profile picture for janemc @janemc

@dewz13

I'd say 98% of us are the first patient with ET our PCPs has ever encountered. ET is so rare it's beyond their imagination.

birgitr is right. YOU must be your own advocate.

Your oncologist/hematologist should be able to counsel you on vaccines, maybe medications too.

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Replies to "@dewz13 I'd say 98% of us are the first patient with ET our PCPs has ever..."
birgitr | @birgitr | 3 hours ago

@janemc Honestly since now no one has mentioned vaccines specifically in our situation. Do you have some basic recommendations which kind of vaccines are necessary?

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