reclast infusions

If I may ask, what are your dexa scores? How old are you? Is your Osteoporosis related to loss of estrogen during menopause or another reason? There is plenty to read about experiences of others with osteoporosis and a variety of approaches to understanding and treating it. Check out the variety of subheadings under the main category of Osteoporosis. What is your physicians rationale for recommending this drug? Is he/she your PCP or an endocrinologist? I am not a medical professional just another woman with osteoporosis. Many of us support the idea of doing our own research so that we can work in partnership with our doctors and be good advocates for ourselves.

Hello, I want to share my story, I had the reclast infusion on December 4of last year, I had som much pain for two months. Then finally went away in my shoulders but stayed in my hip, it has been two months and the pain in my shoulders are back , it is the worse pain I have ever felt in my entire life. The only watt I can’t explain it is that it feels like labor pains in my shoulders. It comes in waves and stays for anywhere from a half hour to a hour hour. I contact the FDA and is writing a report on the reclast. I can’t take the pain anymore. All I do in cry and moan, when the pain comes. I am working on stopping this drug and letting people know what happened to me. REClast has ruined my life. Raelene

Thank you so much for sharing your experience. I will definitely refuse this treatment

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@raelenewilma

How long was your infusion time? Did you do any hydration pre and post infusion? Some people also take Tylenol pre and post.

I am using Fosamax. I generally do well with all medications, but I didn't want to risk Reclast. My issue with an infusion is that there is no turning back. If you have a reaction (and some people do), it's impossible to take it out of your system. You are stuck with it. Reclast isn't a medication that leaves your body after a few days. My decision was to use the least "risky" method to follow up my Tymlos treatment.

Definitely talk to your doctor (or another doctor) about the choices.

@gravity3 yes i did hydrate and I took Tylenol. I am is so much pain

@raelenewilma

I am so sorry that it has effected you this way.

@njx58 Thank you for, I went to so many doctors and not one can help. very discouraging. raelene

I have been on Reclast Infusion for the past three years. I did not develop a rash as I did with the Prolia injection.
I improved by a few tenths. So, my spine is classified as Osteopenia instead of Osteoporosis on the most recent DexaScan.
But I am diligent about daily exercise, weight lifting, supervised group classes at the gym, planning and preparing nutritious meals, and taking Calcium, Manganese Citrate, and Vitamin D supplements.
The endocrinologist was not willing to acknowledge the credibility of my lifestyle habits. I am questioning going for another three years without a medication break for one year. My new female PC will look up the research for me. Right now, I am reviewing the guidelines for treatment of osteoperosis.
Does anyone know the best guidelines to read? Thank you.