← Return to Anyone living with Essential Thrombocythemia with JAK2?

Discussion
lindamarie63 avatar

Anyone living with Essential Thrombocythemia with JAK2?

Blood Cancers & Disorders | Last Active: Jul 18 8:22am | Replies (622)
Comment receiving replies
Profile picture for dewz13 @dewz13

How involved is your PCP in your condition/medication? I don’t mean diagnosing but do they acknowledge your condition? Notice changes in your blood labs? Recommend things like vaccines based on the fact that you have ET?
I was diagnosed in February.

Jump to this post

Replies to "How involved is your PCP in your condition/medication? I don’t mean diagnosing but do they acknowledge..."
birgitr | @birgitr | Apr 24 2:14am

@dewz13 In
In my case my PCP knows nothing about this condition and honestly I am my own advocate in this journey.

VIEW AND REPLY
janemc | @janemc | Apr 24 8:58am

@dewz13

I'd say 98% of us are the first patient with ET our PCPs has ever encountered. ET is so rare it's beyond their imagination.

birgitr is right. YOU must be your own advocate.

Your oncologist/hematologist should be able to counsel you on vaccines, maybe medications too.

VIEW AND REPLY