I have similar neurological symptoms of dizziness, off-balance, weakness, some episodic double vision post stem cell transplant for scleroderma, which was administered with chemo/radiation and high-dose steroids. I have not been diagnosed yet with any specific neurological condition. At first, it was considered post-transplant fatigue, which was supposed to correct itself with 6-12 months. My symptoms are only getting worse 14 months post-transplant. There must be a reason for that. It looks like I have long-lasting post-transplant neurological deficits.

How does the CLIPPERS start? Did anyone have chemo/radiation before CLIPPERS started? Any insights are appreciated.