This is a long story but it was a long journey to get rid of my dizziness. My vertigo started suddenly and became more and more frequent over 8 months. It was totally unpredictable. After a referral from my GP, I consulted a local PT who specializes in "dizziness." When I called, she asked me: "When you get dizzy, do you move or does the room move." I move, to which she answered I did not have BPPV and she couldn't help. (Turns out she was right.) I went to 8 different doctors and had many MRI's, sonograms and scans, all of which informed me what it wasn't. It wasn't my heart, it wasn't my ears, it wasn't a blockage in my brain or arteries, and it wasn't my spine (per se). It WAS my central nervous system, and I finally fount an ENT who diagnosed me with cervical vestibular migraine. The vertigo was coming from overactivity in my upper cervical spine, which directly affects the brain. (The migraine part is misleading. I don't have headaches, I have dizziness (vestibular) and occasional neck pain.) The condition usually arises from a trauma to the neck, maybe something you didn't even register. In my case, I had a cervical fusion 10 years ago. Anyway, the ENT has this same condition himself. The fix was a tiny dose of amitriptyline (elavil) and a combination of riboflavin, magnesium glycinate and COQ10. (These supplements and dosages are so well known they make gummies called headache or migraine supplements) The initial dose of amitriptyline helped the frequency and duration but I was still getting periodic vertigo. He upped the dose (but it's still tiny--I have to cut the lowest size pill). He also gave me a script for cervical physical therapy. The vertigo has disappeared even before I started the therapy. The cervical PT in my case is manually manipulating the soft tissue around the skull and in the neck muscles, as well as postural exercises. Some of the postural exercises are as simple as pulling your shoulder blades together and down and chin tucks. It progresses from there. I have told many people this story and some of them have gotten relief just from the supplements. My GP told me that this condition is notoriously difficult to diagnose by other than a specialist. I found my doctor by doing a web search for doctors who treat dizziness or vertigo in my geographic zone. It's worth a try for those of you who have not been helped by other treatments.
@lindasrk11 Congratulations! Great summary, helped a lot.
Glad you’re feeling better. Long journey with a happy ending.