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@deemold
Hi
Just wondering how you are getting on now? I had my surgery about a month before you. I am also younger for this cancer, 44 when diagnosed. Dont drink ir smoke and regularly excercise at the gym and swim, eat very healthily, so was absolutely shocked when it was found after 4 months of very painful chest and reduced eating as a result.
I had chemo , surgery then radiation.
Unfortunately I got an infection in my throat incision, so had to have a jj tube for feeding for 6 months post surgery.
When that healed and I tried to eat, I had a stricture! What a pain! I also got regular dilations, but they couldn't stretch enough, so got a temporary stent, which was AMAZING! Could eat most things and no regurgitation, what a dream. It couldn't stay forever, so came out, but stretched the tube well. I still get dilations every 6 weeks, as theres a bit of a kink in the tube which needs to be straightened out. But I can now eat much more, and only feel sick if I eat too much, quickly, dont chew my food enough (regurgitation) or eat sugary stuff or coffee on an empty stomach.
I hope you are doing okay or better now 😀
Leila

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Replies to "@deemold Hi Just wondering how you are getting on now? I had my surgery about a..."

@leilac - I am so happy to hear you are doing well. AND- so nice to hear from another "atypical age and lifestyle" person...it was such a mind blowing thing to be dx with this. It sounds like you have been through the ringer!
I am doing better with the strictures- some tightening being noticed, but not severe enough yet for another dilation.
Bigger issue right now is/was my immunotherapy- we finally made the call to discontinue after 3 months due to the side effects being too severe (and not reversible....that was fun to learn).
The learning curve continues.