1. < Prostate Cancer
Profile picture for monahanirvingjames

Prostate cancer metastacized to the Iliac lymph node

Posted by monahanirvingjames @monahanirvingjames, Apr 14 12:27pm

I have metastatic prostate cancer in my iliad lymph node. They want to radiate and have me take lupron. I am OK with the radiation but concerned about the effects of the lupron. No doctor can yet explain the benefit versus loss of quality of life risks. They believe both treatments will produce better results but I have not confirmed that based on my research. Any advice is appreciated. Thanks, Jim

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Profile picture for Jeff Marchi
Jeff Marchi | @jeffmarc | 1 day ago
In reply to @dlachn "I know this is a little negative but based on my own experience you may want..." + (show)
Profile picture for dlachn @dlachn

I know this is a little negative but based on my own experience you may want to add into your discussions with your doctors as where it might move to next. Proactive approach is new to some of these guys but more are thinking ahead. My research and personal experience indicates the next stop is the pelvic area and or vertebras or continue onto the next lymph nodes. The only way you will know about ADT is to try it. My advice is to avoid Lupron. Once you take that shot you are in for the long ride and if you bad reactions you have no way out. I have only been on Lupron but refuse it now. If I were to I would chose Orgovyx now . I have had 80 radiation treatments over the last 14 years and continue to prefer SBRT over ADT.

Jump to this post

@dlachn
If only we all had the choice of SBRT versus ADT. I took six month Lupron shots for six years. I am now on Orgovyx, 3 years, But my testosterone is starting to rise, and I may have to go back on Lupron. I didn’t find a major difference in side effects but a lot of people say It is better. My hot flashes may be a little less frequent, but it also could be that I’ve been on it so long.

I have BRCA2 and because of it my cancer is very aggressive, I need to stay on ADT plus an ARPI for long-term PSA control.

Many people do not have anything show up on a PSMA PET scan when they have a rise in PSA, The question is how long can they safely wait for something to show up and be zapped. Some people just need to stay on ADT.

REPLY
Profile picture for cadaddy
cadaddy | @cadaddy | 17 hours ago
In reply to @heavyphil "@cadaddy SBRT for how many days? It’s usually just five (5) if it’s all SBRT." + (show)
Profile picture for heavyphil @heavyphil

@cadaddy SBRT for how many days? It’s usually just five (5) if it’s all SBRT.

Jump to this post

@heavyphil
Yes, 5 days of treatment over 8 days. The doses to the prostate and nodes were 800 cGy and one additional 500 cGy dose to the area.

REPLY
Profile picture for monahanirvingjames
monahanirvingjames | @monahanirvingjames | 12 hours ago
In reply to @heavyphil "@cadaddy SBRT for how many days? It’s usually just five (5) if it’s all SBRT." + (show)
Profile picture for heavyphil @heavyphil

@cadaddy SBRT for how many days? It’s usually just five (5) if it’s all SBRT.

Jump to this post

@heavyphil
Still waiting. The team is deliberating and will recommend 5 days or 33 days.
Thanks, Jim

REPLY
View MoreView Less
Please sign in or register to post a reply.