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Essential Thrombocythemia JAK2 symptoms of dizziness/vision distortion
Blood Cancers & Disorders | Last Active: 1 day ago | Replies (9)Comment receiving replies
Dad had ET with visual distortions with ET, which he described as blurred vision and loss of peripheral vision at left or right for a day or two. This would come and go, and seemed to improve with HU. But we all respond diff to the meds.
What you describe is familiar to me as a heart patient also with ET CALR). I have a bad mitral valve, so am looking at cardiac surgery. Relating that saga on this thread in case it is pertinent to anyone else.
https://connect.mayoclinic.org/discussion/et-calr-looking-at-heart-surgery/
Glad you got both cardio and onco to weigh in on this! Keep us posted!
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@nohrt4me I’ve been on Hu 500 for a year. I’ve had some vision problems such has blurred & dry eyes. I just developed a chalazion on my right eyelid. My ophthalmologist had me take antibiotics and warm compresses to my eyelid. Now he wants to put a small amount of steroid shot in my eye. Has anyone ever had this experience? I’m very concerned that maybe my medication is causing this. Or my blood cancer, which is ET would love to hear from someone who has had this problem.