← Return to I have a neuroendocrine tumour in the small bowel and liver lesions

Discussion
Comment receiving replies
Profile picture for fraaseo @fraaseo

@dbjoyce Agree! I had a small bowel obstruction in 2022, pathology confirmed SB NETS & 4 affected lymph nodes. Had a successful resection. Fast forward to 2024 PET scan revealed it was back with possible Mets. My NET specialist decided to do an outpatient peek & see laparoscopy to see what he was dealing with. Two weeks later I ended up having a major 7 hour cytoreductive/debulking surgery to strip/remove Mets of liver with triangle resection, 2.5’ lower colon removed, appendix, lower abdominal walls, gallbladder, diaphragm, peritoneum, mesentery mets removed & a repeat small bowel resection. Huge open surgery & somewhat painful recovery. However, I credit my NETS surgeon with having the knowledge to look first & get it all at once! I was started on Octreotide injections & have remained clear for the last 2 years.

Jump to this post


Replies to "@dbjoyce Agree! I had a small bowel obstruction in 2022, pathology confirmed SB NETS & 4..."

@fraaseo Thank you for sharing. My second surgery was also cytoreduction with removal of 92 cm ileum and right colon, omentectomy, liver ablation and stripping of peritoneum. It lasted 8 hrs. I am only 9 mos post surgery and doing quite well outside of occasional elimination issues. I know if I had open procedure 5 years ago I would have been better. Anyway, question....how long before your digestion improved, did you have to take bile acid sequestrants? Lastly, I start Lanreotide next week...did you have side effects from that?