Sjogren and PN

Hello @drmeb, I don't have Sjoren's but do have neuropathy in my feet and legs with only numbness and some tingling. There are some discussions on Sjogren's that you might find helpful - https://connect.mayoclinic.org/search/discussions/.

While you wait for others who have some experience with both conditions, I found an article that you might find helpful on the Neuropathy Common's website - .
-- Sjögren's Syndrome - Sjögren's syndrome is a common cause of immune neuropathy. It is treatable, so it’s worth knowing if you have it.: https://neuropathycommons.org/neuropathy/causes-neuropathy/sj%C3%B6grens-syndrome

@johnbishop thank you for this useful info.

Hi
I have neuropathy and numbness on my whole face. I also have sjogrens. Part of numbness is from cyberknife treatment I had 3 years ago for trigeminal neuralgia. This is very debilitating . I have lost about 50 pounds since the beginning of this awful disease. It’s very hard to chew and eat anything hard or dry .
I also have myositis which makes me very weak. I wish i had some answers for you . I’ve been looking and researching since day one.
It’s very hard to keep going some days , but I do . Keep looking and keep going . I know it’s hard but every day is a blessing .

I too have Sjogren's disease and also have neuropathy. But what bothers me the most is my disturbance to my balance which comes from my autonomic nervous system. I take IVIG every three weeks for the neuropathy and it does seem to help. I also have small fiber neuropathy.

Interesting . I am taking ivig 3 days once a month now for a year for myositis but doctor was hoping it would help with my neuropathy but has not helped

@vmd Interisting indeed. My neuropathy is kind of different in that there is no pain with it. Most of my ballance disturbence comes from my ruptured L5 vertebrea. Of course, I am taken LDN too.