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What preparations do you make when travelling with epilepsy?
Epilepsy & Seizures | Last Active: May 18 8:23am | Replies (43)Comment receiving replies
@santosha excited to learn more about how you managed life on your trip! It’s courageous to set out in new ways after so many adjustments and changes.
I agree about epilepsy being often a hidden condition, then it can also become hyper-visible! I’m finding that people-myself included-have a lot to learn and unlearn about this condition.
Hearing about others’ perspectives and experiences in different places, ages, and circumstances is educational and usually encouraging.
I’m learning to appreciate what I have and can accept it more fully, knowing how others suffer in ways I do not. Realizing how people all over the world have epilepsy has enlightened me.
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@marianne72
Hi @marianne72 , I believe the degree of public awareness does not correspond with the number of patients is because the number of neurology specialists are few, thus the exposure of public to anything neurology related will be fewer by comparison to other conditions like diabetes. Medical graduates opt for fields with lesser degree of responsibility and challenges. I’m also glad to know challenges faced by me is not unique to only 1 country.
Health ministries /departments have to be the ones creating public awareness. I believe we face discrimination wherever we are, because others do not understand and that in turn affects our employment prospects and other areas. It’ll be cool if it can be an international awareness campaign instead of merely a national one. Haha but that’s too ambitious I guess.
Cheers,
Louis