ETJAK2, taking 500mg daily for three years, am 69 yeas old.
Sometimes I wonder whether these alleged symptoms of mine, (tired, sleepless nights, etc.) are the ET, UR, or simply old age taking a toll. I too am moderately active, I walk my dog twice per day and use my treadmill every day for 20 minutes. I swim when I can, and work in my garden. But I ask my self, did I really expect to have the same energy level I had a 50 or 60?? Prob not.
Recently my hair stated shedding suddenly, and I blamed the HU and started takin the UR every-other-day, and wa-laa, hair stopped shedding. (Platelets creeping up) Coincidence?? Correlation does not prove causation.
So, I say, I will just keep putting one foot in front of another, do the best I can to stay grateful and positive and hope for the best.
@jodyjazz
Can I ask you what UR is? I have been shedding hair recently.
I was diagnosed in 2022 and have been taking HU 500 mg at different intervals…first every day, then every other day, and finally four days a week. My platelets are staying right around 500 and my hematologist is okay with it,
Best wishes, Eileen