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Looking for others with Telomere Biology Disorder
Blood Cancers & Disorders | Last Active: 3 hours ago | Replies (6)Comment receiving replies
Welcome to Mayo Connect, @sinojosvacios. Telomere Biology Disorder is a new term for me. I found a number of articles including this from Mayo Clinic.
https://www.mayo.edu/research/centers-programs/center-individualized-medicine/patient-care/telomere-biology-disorders
Since this is a genetic disorder which can impact various areas of the body, being able to work with specialty care teams at Mayo, who work collaboratively with each other will be a great advantage for you,
Do you already have an appointment? Which Mayo campus will be visiting?
Replies to "Welcome to Mayo Connect, @sinojosvacios. Telomere Biology Disorder is a new term for me. I found..."
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@loribmt hi, thanks so much for your response. I've been scouring the research on what it potentially means. Thankfully, I have the ability to read medical jargon, but it only gets you so far until you see the physician and have your own individual conversation and workup done. I sent my medical records in once I found out about the telomeres and immediately got a call back saying that the director himself at the main campus wants to see me and within the next 1-2 months. I'm not sure if this is a typical protocol to be told that I should only see one person and that it should be in such a short time?