Hello -- I am a 42 year old woman seeking to connect with others who have been found to have shortened telomeres. Mine are in the 1st percentile. I also have unexplained mild biapical scarring in my lungs and Nodular Regenerative Hyperplasia in my liver, along with disruptive autonomic symptoms (namely, episodes of tachycardia, temperature dysregulation, and fatigue), and a widespread vascular (livedo/broken capillaries) type rash. With this latest genetics finding, I am heading to Mayo to see if they can put the pieces together for me.

Thanks for reading!