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Anyone diagnosed with Essential Thrombocythemia (ET) with CALR?

Blood Cancers & Disorders | Last Active: Apr 28 4:48am | Replies (32)
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Profile picture for suzannebhi @suzannebhi

@swalex Thanks for your quick response. Any advice on how to deal with the constant mental chatter and the worry?
Thanks for sharing the link. He has been taking vitamins D I did not know about calcium; it's worth a shot.

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Replies to "@swalex Thanks for your quick response. Any advice on how to deal with the constant mental..."
swalex | @swalex | Apr 20 1:44pm

@suzannebhi
I wish I had better advice to offer.
What’s helped me deal with the constant mental chatter, and the stress of living with APS and worrying about a stroke, is focusing on keeping my adrenaline levels down.
I’ve also learned that worrying about something doesn’t help at all.
Instead, I try to gently redirect my attention toward calming, pleasant activities that help me feel more grounded and at ease.

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