Hi from Denmark - Im 67 - PC since 2021 - High risk low volume

@denis76 I Think that if I was 5-10 years older I would probably take the chance with a pause - but I have a Young son and wanna be around as Long as possible, so I dare not to risk it - and thats also my oncologists advice

@jeffmarc

Yes, Jeff, thank you.

I've been taking Erleada for a little over a year.

How long do you think one should wait before thinking about stopping ADT?

I did the 6 quarterly ADT and 28 sessions of radiation. Was exhausted most of the time, but about 9 months after my last ADT injection, started to have more energy and kept going. Now, another 6 months later, the energy level and testosterone are at an adequate level, but still occasionally crash from fatigue

Hang in there. The energy will come back

@spinaltap ,

welcome to the forum. I am /was gleason 9(4+5), PSA 690 (then 180), last year diagnosed. Just had surgery 3 weeks ago. I have been on ADT (Lupron then Firmagon) since October. I just got a call form my surgeon today. Negative margins. Recommendation to do radiation 6-7 weeks with continued ADT for at least 2 years.
I am only 45 and i do have ATM mutation with a VUS BRCA2.
As Jeff mentioned you may want to either switch up the ADT every couple of years or take a break for a while to make sure you do not become castrate resistant.

Also, since you are in Denmark, the Ancan.org foundation is having a monthly online virtual support chat. You can probably get some good info/advice there and ask questions specific to your case.

Stay strong and be positive!
Dinu

Maybe someone else can expand on my comment. It was my understanding that less than 5 sites called Oligometastasis may be treated with a short course of external beam radiation in the form
of SBRT. Bone might be a preferential site but nonetheless...

Hi,
What are your last PSA numbers? Have you had any recent MRI or PMSA PET scans?

Dave 3+4

@thmssllvn
Yes you are correct, you can treat small cancerous lesions with some form of external beam radiation. Once that area has been maxed out with radiation you can switch to Proton beam.

@clevelandguy It’s been 0.1 for the last 4 years - have not had any new scans - do you Think thats a good idea to have ?

@spinaltap
Hi,
I have been at less than .1 for over ten years and have never been rescanned since my cancer was discovered and removed by surgery back in 2014. I will let my PSA tell me if I need to be scanned. In my humble non medical opinion if my PSA goes up my doctor will want a scan.

@thmssllvn
If someone is Oligometastatic Then zapping the five metastasis is a good way to treat them but the primary (prostate) Also needs to be treated. Five sessions of SBRT to it could take care of it as well, Or surgery, Or IMRT, Or even HDR brachytherapy.

There are many options, but the prostate should be taken care of. They do find that in very advanced cases where the cancer is all over the body treating the prostate is not really giving much of an edge to the patient.