← Return to Myfortic vs Cellcept or Mycophenolate? Share your experience

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Profile picture for Becky, Volunteer Mentor @becsbuddy

@altabiznet My diagnosis is Clippers—chronic lymphocytic inflammation with pontine perivascular enhancement responsive to steroids-phew! It means that the immune system attacked my brain and left lesions and my brain wouldn’t work where the lesions were. Along with the drugs, I had therapy to help me walk, swallow, etc. I went from a wheelchair to a walker to a cane to walking unaided and now, back to a cane. It’s been a long road and Mayo Clinic Connect has made all the difference for me! Thank you for asking!
I tolerate rituxan quite well. Yes, I’m tired after, but part of that is the whole experience-usually 4-5 hours for me. I’m just so happy to get it that nothing bothers me!

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Replies to "@altabiznet My diagnosis is Clippers—chronic lymphocytic inflammation with pontine perivascular enhancement responsive to steroids-phew! It means..."

@becsbuddy

My diagnosis is scleroderma with Raynaud, but I am also developing peripheral neuropathy. My feet are tingling, getting numb, muscle wasting in the legs, getting off-balance. I have also noticed memory problems and brain fog. From walking independently to a cane + wheelchair. This progression happened very fast and it is getting worse. Rituximab + Cellcept are my next treatment choices.

What is your dose and schedule of Rituximab? For how long does the fatigue last post infusions? Any detail regarding your experience with the drug will be helpful. Thanks