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Do you exercise daily while in multiple myeloma treatment?
Blood Cancers & Disorders | Last Active: May 7 2:06pm | Replies (12)Comment receiving replies
I have high risk SMM and on the 2-mo blood work plan; I will start I-VRD treatment if/when I reach a threshold. I'm working on getting in the best shape I can before treatment. If weights/resistance and other exercise is new to someone, getting a personal trainer/therapist can help prevent injury while new to or ramping up workouts. With I-VRD treatment one can lose some muscle mass because the CD38 protein that is targeted by "I" is concentrated on myeloma cells can also be on muscle and nerve cells. I'm hoping bulking up before will keep me strong enough to be able to stay in shape once treatment starts. I'm 72 and used to bike a lot, now more walking.
Replies to "I have high risk SMM and on the 2-mo blood work plan; I will start I-VRD..."
@kayabbott
I find playing pickle ball a great way to get some fun exercise. I don’t feel comfortable going to the gym . At this point in in time. I’m at day 90 after my stem cell transplant. just started my maintenance 10 mg of Revlimid. My lambada light chain # was @ 4700 before the transplant. It’s down to 2.96 . Know the goal is to keep it there.
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@kayabbott
I’m 66, high-risk SMM and in my 6th week of Darzalex treatment, which is going well (no side effects except mild tiredness for a day after they stopped steroid prep). As soon as I got my diagnosis in 9/25, I have upped my Pilates routine. I use a resistance chord and throw in a few bits of yoga. Like you, I really feel getting my body in the best shape I can (within reason as I can be very lazy!) can only help it deal with things. Instead of three times a week, I’ve upped Pilates to 5-6 days a week. I do it at home (started 15 years ago with a DVD; not one for gyms), followed by guided meditation (which I never would have thought to get into). It’s a great help in feeling positive and that I am doing what I can to help my body and head. Thanks for sharing and good luck everyone finding a self-care routine that works for you.