I was diagnosed last October at 70 years old. I started with one HU capsule a day and after 11 days the doctor suggested we add 2 more per week. I was willing but my husband expressed his feeling that there hadn't been enough time for a good evaluation of the medication. I am grateful that he did that because my numbers continued to go down and now I take 4 capsules per week and my last blood test showed a 364 level.
If I have any side effects I haven't noticed them enough to really pinpoint the medication as the cause. Yes, I am tired at night but my life is hectic with a physically challenged husband, continued recovery from a broken hip and ankle in March of 2025 and two adult sons living at home.
Don't fear the diagnosis, just stay in touch with your body.