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DiscussionAnyone have chronic lymphocytic leukemia (CLL)?
Blood Cancers & Disorders | Last Active: Jun 22 7:21am | Replies (368)Comment receiving replies
Replies to "@loribmt I reached out previously regarding my husband’s AL rising since 2020 He received his lab..."
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Good morning, @rimmy2. It’s way too early in the game to jump to conclusions with a diagnosis. But I think your concerns about your husband’s absolute lymphocyte levels increasing are legitimate. Not in the respect that this is something to worry about but that there is an obvious upward trend. The levels are above what’s considered normal and you’d like your NP to follow up. The number itself isn’t necessarily cause for concern. It just suggests that something’s going on to create a higher than normal level of lymphocytes and should be investigated. She shouldn’t be dismissive of your concerns.
The NP may be able to order more tests such as a peripheral blood smear and, if it wasn’t done, a CBC with differential. This measures various components of blood, including lymphocyte levels in relation to other WBC. There’s also flow cytometry which identifies types of cells.
If that’s beyond her capability to order or interpret, then I’d suggest getting a referral to a hematologist or hematologist oncologist. They specialize in blood conditions. A consultation with a specialist, I feel, would go a long way towards giving you reassurance. If this is CLL, that remains one of the most treatable forms of chronic leukemia. Many people can delay treatment for years before it’s required to help with symptoms. But that’s putting the cart way before the horse!
If I may, please stop searching and self diagnosing now. This may be nothing and then you’ve wasted so much time, energy and added to your mental stress. IF something is going on, then you and your husband will deal with it at the time. Until then, get on with life and enjoy the gifts of this new season with all the birds singing, flowers blooming and renewal all around us…every day is a gift. ☺️
I’ll be interested in hearing what your NP says on May 5th. I hope you’ll give me an update. Can I be nosy?