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Anyone have multiple meningioma brain tumors?
Brain Tumor | Last Active: May 29, 2023 | Replies (148)Comment receiving replies
Welcome to Connect, @nancye3.
We have a few members in the Connect community who have experience with meningiomas personally or with family members, and I’m guessing it’s likely one of them will know Dr. O’Neill or Dr. Meyer. Please meet @jackieerickson , @07ram, @pegorr , @lindajean, and @pennie . Others who may be able to give you personal information with these doctors are @robinlynn , @audrapopp , @jkenser and @lynda1992.
Meanwhile, you might want to take a look at Dr. Meyer’s Mayo Clinic bio, if you haven’t already, here:http://mayocl.in/2sXrqJp. Dr. O’Neill’s profile is located here: http://mayocl.in/2trNT4Z. I think these will give you lots of good information on their backgrounds, and you can watch a video of Dr. Meyer on his profile, as well.
Did your sister experience any more seizures after her 2001 surgery?
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Thank You for your reply. My sister has been on anti seizure meds since her surgery in 2001. She had 2 seizures after her surgery but has not had another since. She is receiving conflicting information from two different neurosurgeons here as to a treatment plan. That is why she wants to seek a 3rd opinion from a top medical center with lots of experience with multiple meningiomas. She has been trying to decide between Mayo and Johns Hopkins. She called and made an appointment at Mayo on July 26. She is supposed to see Dr. O'Neill and Dr Meyer. Her tumors are small at this time but one Doctor thought she should have Gamma Knife right away, the other Cyber Knife or possibly wait 4 months to see if they have grown. He is the surgeon who operated on her in 2001. He also suggested surgery on one of the new tumors behind her ear to make sure it is benign. So needless to say she is very confused as to what to do. I am hoping her trip to Mayo will provide some much needed clarity on a course of treatment.
Thanks Again,
Nancy