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Profile picture for Teresa, Volunteer Mentor @hopeful33250

@spatase
My only thought is to seek a second opinion. Is he currently seeing a movement disorder specialist? This is a neurologist who is specially trained in movement disorders, such as Parkinson's disease.

What type of testing was done to determine the diagnosis of PD? Given the severity of his symptoms, have any other PD drugs been tried?

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Replies to "@spatase My only thought is to seek a second opinion. Is he currently seeing a movement..."

@hopeful33250 He has seen two PD movement disorder specialists but they dismiss the autonomic symptoms and are happy they have addressed the minor tremors. He gets hot/cold waves that attack him hourly - he is either experiencing teeth chattering with nearly blue hands and cold body or he's sweating with a burning sensation on his face and sweating in the groin and his feet even sweat. It makes him unable to do anything because he's either undressing or adding clothes to try to find a middle ground of comfort. It is taking a toll on him emotionally and he says he doesn't know how much longer he can live like this.