Connect
← Return to Anyone with Factor V Leiden mutation & MTHFR blood disorder?
Discussion
Anyone with Factor V Leiden mutation & MTHFR blood disorder?
Blood Cancers & Disorders | Last Active: Apr 24 11:17am | Replies (15)Comment receiving replies
@swalex my doc said vitamin k isn’t a big problem with xarelto. Just to avoid high dose supplementation. I was checked for APS and every other clotting disorder in the book. The three I have are FVL, factor 2 mutation, and MTHFR….which I refer to as the M***** F***** lol. This thing has been like a domino effect in my life. The brain injury and the epilepsy are the worst right now. I haven’t had a seizure or aura since December 15, 2024. That day I was sitting in my recliner watching football, had a full blown seizure in front of my family. I was convulsing so hard that I broke my arm just below the neck of my humorous. I woke up in the ER thinking to myself “great it happened again”. They didn’t discharge me with any new meds or rescue meds….went home and had another one. I tore my rotator cuff, but I am a little hesitant of coming off xarelto to get it fixed. It has been hard coming to terms with so many health probs at such a young age. I do appreciate your insight, we can get through this together.
Replies to "@swalex my doc said vitamin k isn’t a big problem with xarelto. Just to avoid high..."
Connect
@jasonbsmith77
Yes, you’re right—it truly is a miracle that you survived.
VWF, particularly Type 2, is an inherited condition that, in certain situations, can increase the risk of complications, especially when blood pressure becomes very high. In your case, I understand that the CVST occurred when a clot blocked the normal drainage of blood from the brain, possibly near the cerebellum. When this happens, the brain’s ability to control movement (sometimes described using the “homunculus” representation) can be affected.
As pressure builds within the brain, reduced circulation due to impaired venous drainage may damage brain cells and can ultimately lead to a stroke.
Have you had a follow-up MRI since then?
Please understand I'm not an MD.
I’m mentioning all this because my son also has Factor II. At the age of 27 (many years ago), he was involved in a car accident. Although his main injury was in the left prefrontal cortex, he experienced some seizures and ultimately needed surgery to remove blood clots and prevent further hemorrhage.