Welcome @jesslily! I'm glad that you found this forum. I'm sorry to hear that you have had a lot of issues with carbidopa/levodopa (C/L). Has your doctor suggested any other PD medications? Here is some information from the Cleveland Clinic website about the different medications available to treat PD: https://my.clevelandclinic.org/health/treatments/parkinsons-disease-medications.

As you are not taking medications, are you involved in physical therapy that is specifically for Parkinson's? Do you have a daily exercise program in place?

Here is some information, from the Parkinson's Foundation website, regarding exercise and Parkinson's, https://www.parkinson.org/living-with-parkinsons/treatment/exercise

I look forward to hearing from you again.