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Living with Parkinson's Disease - Meet others & come say hi
Parkinson's Disease | Last Active: 1 day ago | Replies (912)Comment receiving replies
Hello @trseaman0 and welcome to the PD support group on Mayo Clinic Connect. I am so sorry to hear of your discouragement! PD can certainly be unpredictable. Anxiety can certainly make the symptoms of PD worse. It sounds like you have had many losses recently with the death of your brother and moving from your home to live with your daughter.
How long ago did you have DBS?
It is important to engage in stress-relief activities. What do you do to relieve stress? I'm thinking of deep breathing, meditation, or gentle exercise.
Have you had any physical therapy by a therapist trained to work with PD patients? Are you engaged in any seated exercise programs? Exercise can help manage stress and strengthen the body as the PD progresses.
Will you post again and let me know how you are doing?
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@hopeful33250
I had my DBS device done in 2010.
At this point of having parkinsons for 34 years and that it's progressing, after more than half of it with tremors, my body is exhausted. You have to remember that my tremors are ALL in my lower extremities. My legs absolutely ache and my lower back is always having severe spasms. When I had the DBS device at the Mayo Clinic, I was told that it would help with the severe dyskinesia but because the tremors were all in the lower extremities they just couldn't pin points the tremors because it so different than the signals coming from upper extremities and they still don't because this type is so rare they really don't see this.
As for the anxiety issues, my daughter has them NOT me. She is seeing a counselor every week to help her work with them. I just found her an online support group.
I just had a battery my 5th battery replacement I finally have a rechargeable unit so I will not have to have it replaced every 3 years which I'm excited about.