@surftohealth88
Hello and thank you for the reply. UCSF is out for me. Sorry to hear about the EPE, that is my greatest fear.
As my lesion is quite large relative to the prostate size (28cc) (Pirad 5) and 1MM from the edge at the right base I cannot wait 2-4 months, would not be prudent. From what I’ve read and experienced, those of us that are diagnosed with prostate cancer are often told "don't worry" it is the slowest growing cancer or you have plenty of time... etc. Although this may be very factual for Gleason 6/7 situations, frankly, I am growing a little tired of hearing that phrase.
As many of the experts on this amazing discussion board know, every case of prostate cancer is disparate, every prostate is different, grade types, location of lesions, reaction to treatment widely varies, genetic makeup of the cancer cells and the host, severity of diagnosis or stage, and on and on and on.
Most likely I have microscopic spread and extension into the nerve bundle given the grade and volume seen in the Biopsy results above so I want to move quickly and its not that easy navigating all the gatekeepers of care and getting on schedules for treatment.
@byelliq6
You got this dear @byelliq6 ! You know much, much more than most patients that are just starting this voyage. That is huge advantage in itself. 👍
Did you contact this center in Washington : "Fred Hutch Cancer Center" ?
They even have proton RT therapy for PC ! I heard a lot of nice things about that center in general.
I wish I can be of more help but I was really not very successful with finding and arranging expeditious help for my husband so I am useless in that regard, especially since I bought into that "no rush" theory pushed onto me by both RO and a surgeon. 😟
Wishing you the best of luck 🍀 ! I am sure that you will find provider soon since you are not swayed by those "lullabies". 👍 Tell always that you are looking for treatment center and doctor that will treat your PC and want to make introductory zoom call with a doctor and that it should be ASAP since you have high grade cancer.