1. < Prostate Cancer
Profile picture for monahanirvingjames

Cancer in Iliac lymph node

Posted by monahanirvingjames @monahanirvingjames, 3 days ago

I have metastatic prostate cancer in my iliad lymph node. They want to radiate and have me take lupron. I am OK with the radiation but concerned about the effects of the lupron. No doctor can yet explain the benefit versus loss of quality of life risks. They believe both treatments will produce better results but I have not confirmed that based on my research. Any advice is appreciated. Thanks, Jim

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Profile picture for mrkoji
mrkoji | @mrkoji | 20 hours ago
In reply to @surftohealth88 "Yes , as @mjp0512 said, treatment should be personalized according to many mentioned parameters. Some of..." + (show)
Profile picture for surftohealth88 @surftohealth88

Yes , as @mjp0512 said, treatment should be personalized according to many mentioned parameters.

Some of those are : age, comorbidities, Decipher, gleason, time lapsed before recurrence, germ-line genetic results etc etc.

If your original diagnosis did not include high risk features (gleason over 8, cribriform, IDC, EPE, positive margin, short doubling time etc.) you might need only 6 mos of ADT. You may ask for Orgovyx which has lower incidence of side effects and clears faster from the body.

Also, there are new studies that show that Estradiol patch can be equally effective so you might ask about that - some doctors are already open to prescribing it although they are rare as "unicorns" at present time .

Wishing you the best of luck and complete eradication of cancer 🍀.

Jump to this post

@surftohealth88 I have inquired about Estradiol at three different cancer centers, including the one I get treatment from, and they are all willing to prescribe it. I don't think it is rare any longer. However, my MO says that the patients she has prescribed it for have reported severe fatigue.

REPLY
2 replies
Profile picture for jime51
jime51 | @jime51 | 19 hours ago

I was Gleason 7, 3 tumors in prostate and both R/L Iliac nodes lighting up in PSMA PET scan. I took 44 weekday radiation treatments and am in my 16th month of Orgovyx out of 18 total. @jeff provided helpful information. I have experienced nearly every side effect and am being treated for radiation proctitis. I hope to be finished with treatment and healing by my late-summer 75th birthday and have 5-10 mostly cancer free years. We‘ll see. Talk with your oncologist(s) about your longevity and quality of life goals and options, and don’t be rushed or pressured. All the best!

REPLY
Profile picture for surftohealth88
surftohealth88 | @surftohealth88 | 17 hours ago
In reply to @mrkoji "@surftohealth88 I have inquired about Estradiol at three different cancer centers, including the one I get..." + (show)
Profile picture for mrkoji @mrkoji

@surftohealth88 I have inquired about Estradiol at three different cancer centers, including the one I get treatment from, and they are all willing to prescribe it. I don't think it is rare any longer. However, my MO says that the patients she has prescribed it for have reported severe fatigue.

Jump to this post

@mrkoji

WOW ! Thanks so much for this info 🙏 , that is so encouraging !!!

Are you on the West or East coast ? Yes, estradiol has it's own SA but they are nothing in comparison with regular ADT - more so, estradiol IMPROVES bone density, cognitive function, causes more rapid testosterone decline , less fat gain, and improves insulin effectiveness - I mean - I have no idea WHY medical community is not jumping on those new findings in PATCH trail for god's sake 🙁 ???

REPLY
1 reply
Profile picture for Jeff Marchi
Jeff Marchi | @jeffmarc | 13 hours ago
In reply to @mrkoji "@surftohealth88 I have inquired about Estradiol at three different cancer centers, including the one I get..." + (show)
Profile picture for mrkoji @mrkoji

@surftohealth88 I have inquired about Estradiol at three different cancer centers, including the one I get treatment from, and they are all willing to prescribe it. I don't think it is rare any longer. However, my MO says that the patients she has prescribed it for have reported severe fatigue.

Jump to this post

@mrkoji
Must admit that is a side effect. I’ve not heard of yet, At least from the people, I know that are on it. The fact is it reduces your testosterone down just like ADT and that can cause fatigue.

If you go over to the ancan.org Website and Search for estrodiol or Wassersug You can find one hour talks about going on estradiol. I will give you a better idea people’s experiences.

REPLY
Profile picture for heavyphil
heavyphil | @heavyphil | 1 hour ago
In reply to @surftohealth88 "@mrkoji WOW ! Thanks so much for this info 🙏 , that is so encouraging !!!..." + (show)
Profile picture for surftohealth88 @surftohealth88

@mrkoji

WOW ! Thanks so much for this info 🙏 , that is so encouraging !!!

Are you on the West or East coast ? Yes, estradiol has it's own SA but they are nothing in comparison with regular ADT - more so, estradiol IMPROVES bone density, cognitive function, causes more rapid testosterone decline , less fat gain, and improves insulin effectiveness - I mean - I have no idea WHY medical community is not jumping on those new findings in PATCH trail for god's sake 🙁 ???

Jump to this post

@surftohealth88 $$$$$$$$
Phil

REPLY
View MoreView Less
Please sign in or register to post a reply.