← Return to Looking Back - What Were Your Early Warning Signs of Parkinson's?

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Profile picture for jatonlouise @jatonlouise

You might want to keep a log of things that you suspect could be Parkinson's and have your doctor refer you to a neurologist if the frequency and severity of any symptoms are increasing. I appreciate that you don't want to be constantly fretting about it because at the moment there's no way you can prevent it. But in my case, it took a very long tmie to get a diagnosis and I was bed-ridden for a while, and that pushed me. If I had it to do over again, I don't know how I would have handled it. My primary care doctor was doing all the right things; he checked all thouse maladies that afflict folks whoa are als old as dirt and in ceach case found that I had a slight case of the malady - high blood pressure (but jsut a tiny bit);asthma (but just a tiny bit);high chloressterol butjust a tiny bit.I was alsread hypothyroid and taking thyroxin and had been for decades so it seemed to be under control. If I hadn't had PD, any one of those maladies wuld have slowed me down a bit but the meds for them were managine thos particiular symptoms very well, but despite all of that, I . I contined to get more and more severely fatigued. There was nothing that sshouted PD. I hope they make soe progress in developing a definitive test for PD, because if you watch this Support Group awhile you'll see that lots and lots of people have semilar stories.The're doing soe research on whether dogs can detect the substance that indicated someone has PD. It's not as wild an idea as it sonds. Dog can be trained to sniff our drugs. A woman who is a "super-smeller - thos folks who have a particularly acute sense sof smell, had noticed that her husband had sstarted smelling differently around the time he developed PD. They have identified the source of the smell and confirmed that this woman (who was also a nurse) reall could differentiate between t-shirts worn by people who had PD and those worn bey people who don't. They tested her with Tshirts from 40 people. Some and PD and some didn't. She got 39 of the shirts right. but 8 months later, a man who had participated in the experiment was diasgnosed with PD, so she didn't get it wrong! Others are working on blood tests that can yield a definitiv diagnosis. Just imagine how fantastic that would be! It could save alot of resources that go into getting a diagnosis ( I plalyed "Stump the Doctors" 3 times and 3 different hospitals before I got my diagnosis). Imagine the cost of that. and the frustration of the patients. as well as the doctors. Or,if I were capable of a succinct response , I suppose it boils down to:1) keyp and eye on it: 2) try to gather as much data as you can on what you exprience bcause you never know wwht may make something click and r. Parkinson is dragged kicking and screaming our of his hidey-hole and you can get your badly needed l-dopa and h a better life and all that extra time and expensse spsent on thosee 2 extra efforts to diagnose you can be used to diagnose and treat other folks. Would n't that be nice?!!

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Replies to "You might want to keep a log of things that you suspect could be Parkinson's and..."

@jatonlouise Dogs are not the only ones helping us. Long before I was diagnosed wPD, my cat would come to me periodically and push my leg 'til I sat down. I have always pushed myself and ignored my early signs.