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Autoimmune Diseases | Last Active: 9 hours ago | Replies (52)
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@lkirnbauer: The white lacey swirls seem "suspect" to me. If you can find someone to do a biopsy, that would give you a definitive diagnosis...or not. This OLP stuff is truly annoying and frustrating. A dermatologist did a biopsy of my lip which was positive, and by association, the OLP diagnosis was confirmed. I'm now seeing an oral medicine specialist at a University hospital. Not making much progress even with the specialists involved. Good luck!
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@kathy333 I have the lacy OLP it is called Reticular OLP. Chat GPT this and it can show you pictures. I also got this after Covid. I have had for 3 years. I recently gone to Mayo and comment from physician was they are seeing many more cases since Covid! I have been on Plaquinil now for 9 months. It has calmed down but tongue, lips, roof of mouth the worst. I have various topicals Clobetasol, and another swish and spit steroid but then have to use Mycelex Troche to treat Thrush. So it is on going autoimmune. I had two tongue biopsies by an oral medicine physician who was at a teaching institution. He is an oral pathologist. Very hard to find usually with a dental school. The biopsy was brutal but confirmed OLP. Very hard to find physicians who know how to treat this. I have seen 15 different doctors. Any stress makes it worse. Good luck on finding help. Oral Medicine and Derm specializing in Oral diseases in a medical school setting is best route to try.