Welcome to Connect, @lb3 Oh my goodness, you’ve certainly suffered with your CEL (chronic eosinophilia leukemia) over the years. Eosinophils are a portion of our white blood cells that play a role in the immune system by helping fight infections and producing inflammatory responses. Sometimes, high numbers of eosinophils can crowd together at specific areas of body, causing medical conditions linked to inflammation which can affect multiple areas of your body.

Thankfully you finally received the diagnosis so you could find a treatment! I am sorry to hear that your condition is now attacking your nervous system.
Have you had a 2nd opinion to see if there is more that can be done for you besides taking Gleevec?

Just tossing this out there, but in severe cases of CEL an allogeneic bone marrow transplant has been helpful. With a transplant using donor cells, you receive an entirely new immune, healthy immune system.

What type of treatment are you receiving for your CIDP?