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@jasonbsmith77
I’m really sorry to hear about the epilepsy.

Unfortunately, too many people are not thoroughly tested for the different types of VWF. That’s exactly why I put together the summaries mentioned in the post to @christy77—to help raise awareness.

You might consider asking your hematologist about your vitamin K intake. Dark leafy greens like spinach and kale are rich in vitamin K, which plays an important role in blood clotting. If you’re taking Warfarin or other blood thinners, it’s especially important to keep your intake consistent and discuss it with your doctor.

One more question. Did you ever have an Antiphospholipid Syndrome (APS) test?

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Replies to "@jasonbsmith77 I’m really sorry to hear about the epilepsy. Unfortunately, too many people are not thoroughly..."

@swalex my doc said vitamin k isn’t a big problem with xarelto. Just to avoid high dose supplementation. I was checked for APS and every other clotting disorder in the book. The three I have are FVL, factor 2 mutation, and MTHFR….which I refer to as the M***** F***** lol. This thing has been like a domino effect in my life. The brain injury and the epilepsy are the worst right now. I haven’t had a seizure or aura since December 15, 2024. That day I was sitting in my recliner watching football, had a full blown seizure in front of my family. I was convulsing so hard that I broke my arm just below the neck of my humorous. I woke up in the ER thinking to myself “great it happened again”. They didn’t discharge me with any new meds or rescue meds….went home and had another one. I tore my rotator cuff, but I am a little hesitant of coming off xarelto to get it fixed. It has been hard coming to terms with so many health probs at such a young age. I do appreciate your insight, we can get through this together.