Hello everyone. I stumbled across this page, just looking for experiences from others with thrombophilia. I have factor v Leiden, factor 2 mutation, and MTHFR. My first clot was in my right transverse sinus(vein in the brain) at 23. Led to a brain hemorrhage and a stroke. Miracle I survived. ICU doc and primary just told me that “these things happen”, and I was put on a baby aspirin daily. 5 years later had a DVT in my calf. I was in nursing school at the time, I knew something was wrong with my blood, genetics, or whatever. Primary told me the same thing again. I never smoked, worked out, was a healthy weight, and had no risk factors for developing clots. Insisted on seeing a hematologist, so he sent me. Hematologist told me the same thing! But, he checked me for all the blood clotting disorders just to be safe. He called me a month later and told me I had all those blood clotting disorders. My clot risk is like 20 times that of a normal person without this. I think that is what he told me. Was on Coumadin, now xarelto. It has been almost 20 years since my last clot. I have forgot about it mostly. But, probably once a month I think about how I could just drop dead at any moment. Developed epilepsy a few years ago stemming from the brain injury according to my neurologist. I have been an RN in an ICU for 20 years now, and I have had patients come in with massive PEs. I’m like awesome, that might be me tomorrow. I hate it. Looking for any similar experiences. It can be a scary thing.