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DiscussionOthers out there with CEL (Chronic Eosinophilic Leukemia)?
Blood Cancers & Disorders | Last Active: Apr 18 11:15pm | Replies (24)Comment receiving replies
Replies to "@lb3 , how were you diagnosed?"
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@celia16
Bone marrow extraction at the John Stoddard Cancer center in Des Moines, that was hand delivered to the Mayo Clinic for genetic analysis. Mine has the genetic flip flop of the two markers that I do not recall the names of at this time.
All I do know for certain is that I was end stage, heart palpitations, black-outs, occular migraines, renal failure and joint pain like I couldn't believe, from eosinophil infiltration. Within 2 weeks of starting Gleevec, this was before the generic imatinib was available, my eosinophils went from over 27k to 40. My next A1c went from 15 to 5. Instead of less than 6 months to live, I'm still here 16 years later.